We had 12 hours in hospital in the UK to get used to the management of the condition, and then an agonising wait to get accepted onto the French/Monaco system when we got back after Christmas. We had thought we had gotten over the sleep deprivation years of kids, but they had returned with a vengeance, worrying about nighttime hypos and dealing with an 11 year old's midnight mood swings whilst trying to shove toast with Nutella into her. Alice was also worried about others' perception of her. Never the most of confident of children, she had just settled down at school and this was a massive setback - pricking her finger to draw blood in class, and perhaps talking gobbldygook in front of her peers if her sugars were too low.
Type 1 is a seemingly random event - a virus or genetic flaw triggering the body to kill off it's pancreas, might be to blame. It is totally different from Type 2 which has been linked to lifestyle. We want to spread awareness of Type 1 diabetes - and prevent insensitive teachers from accusing Alice of causing the condition from too many sweets (yes, it happened). Around 20,000 kids are Type 1 in France, in contrast to the some 3 million adults with Type 2. Hence the near 2 month wait to get onto the French Type 1 programme. In the agonising interim, Diabetes UK helped us with education and information, and a lot of support. Even now we are in the French system, we are still leaning on Diabetes UK for help.
Which brings me nicely onto my next challenge. I want to raise awareness for Diabetes Type 1 to prevent any more insensitive comments. Alice has a modicum of self confidence back. She is gradually becoming more independent treating her condition. I want that to continue and to prevent setbacks. I would also like to raise money for this fabulous charity. Did I mention they also fund research? They might be able to find a cure in Alice's lifetime. Imagine that. A new pancreas.
My challenge: I was always down to run the Cro Magnon on June 21/22 - a race I have been helping with the organisation of, in a very small way, and had always planned to run it. 135km of mountain trails with 7800m or so of climbing. Non stop. In order to REALLY get your attention, I have decided to also run to the start. With all my equipment, unsupported and non stop. An extra 90-100km, on mountain B roads. To put this into perspective, the Marathon des Sables is only 15km more (250km or so), and you get 7 days to run that, and there aren't really any mountains. I am planning on doing 2 laps of the Cro in around half the allotted time it takes to do the Sables.
Please take a minute to visit my page. Please forward to any and all of your friends and acquaintances. Please spread the word.
Many many thanks